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Wednesday, August 20, 2008

Suicide in Asian Americans



The University of California, Davis, issued the following announcement:

Suicide in Asian Americans

Asian Americans whose families experience a high degree of interpersonal conflict have a three-fold greater risk of attempting suicide when compared with Asian Americans overall, according to a new study by University of California, Davis, researchers. The risk is tripled even among those who have never had a diagnosis of depression.

"Because of the great emphasis on harmony and family integration in many Asian cultures, family conflict is an important factor to consider when studying suicidal behaviors among Asian Americans," said Stanley Sue, a professor of psychology and Asian American studies at UC Davis and one of the study's authors. "Our study suggests that we need to more precisely determine the kinds of family conflicts that are associated with suicide risk among Asian Americans, and find means of preventing these family problems."

Sue's study is a new analysis of data from the 2002-2003 National Latino and Asian American Study, the largest nationally representative survey ever conducted of Asian Americans. Funded by the National Institute of Mental Health, the landmark survey involved in-person interviews with more than 2,000 Asian Americans nationwide. Subjects were asked about income, marital status, age at time of immigration or number of generations their families have been in the United States, English language proficiency, family conflict, and suicidal thoughts and suicide attempts, among other questions, yielding a wealth of raw data for researchers to examine for insights into Asian American mental health.

In the national survey, 2.7 percent of the Asian Americans interviewed reported having attempted suicide at some point during their lives; 9.1 percent of the total group reported having had suicidal thoughts.

Further mining the survey data, Sue and lead investigator Janice Cheng, a psychology graduate student, sorted out the suicide-prone individuals' answers to additional survey questions that asked about past diagnosis of depression and family income. The researchers compared the answers with those of interviewees who had not reported suicidal thoughts or suicide attempts.


The researchers found that among Asian Americans in the national survey, family conflict was a significant risk factor for suicidal thoughts and suicide attempts -- independent of depression, low income or gender.

"This is the first nationally representative investigation of family conflict and suicidal behaviors among Asian Americans," Sue said. "Our findings suggest that high family conflict has an independent and additive effect in predicting lifetime suicidal thoughts and suicide attempts among Asian Americans."


Previous studies by other researchers have shown that certain subgroups of Asian Americans, including college students and Asian American women older than 65, have relatively high rates of suicide or suicide attempts compared with the rest of the nation. However, the UC Davis study was not designed to compare rates of suicide among different groups.

Informed Consent in Psychotherapy and Counseling: Forms, Standards and Guidelines, and References

Informed Consent in Psychotherapy & Counseling: Forms, Standards & Guidelines, & References
Ken Pope


Here are some resources that may be helpful in thinking through the process of informed consent. They include:
links to a variety of forms for informed consent from the American Psychological Association Insurance Trust; the University of Rochester Counseling Center; the West Virginia University Carruth Center for Counseling & Psychological Services; Laura Brown Ph.D., ABPP; and the Center for Ethical Practice; excerpts addressing informed consent from the standards and guidelines of professional associations (with links to the original documents) including American Association for Marriage & Family Therapy; American Association of Christian Counselors; American Association of Spinal Cord Injury Psychologists & Social Workers; American Group Psychotherapy Association; American Mental Health Counselors Association; American Psychoanalytic Association; American Psychological Association; Association for Specialists in Group Work; British Association for Counselling & Psychotherapy; British Columbia Association of Clinical Counsellors; California Board of Behavioral Sciences; Canadian Counselling Association; Canadian Psychiatric Association; Canadian Psychological Association; European Federation of Psychologists' Associations; Irish Association for Counseling & Therapy; National Association of Social Workers; National Board for Certified Counselors; and Psychological Society of Ireland; and quotes and information about informed consent from articles, books, and studies.


Sample Informed Consent Forms
Sample Psychotherapist-Patient Contract from the American Psychological Association Insurance TrustThis site also includes forms for:
Sample Forensic Informed Consent Contract
Sample Outpatient Services Agreement for Collaterals
Informed Consent for Assessment and Treatment from the University of Rochester Counseling Center
Informed Consent for Psychotherapy or Other Services, and Notice of Privacy Practices from the West Virginia University Carruth Center for Counseling and Psychological Services
Informed Consent for Psychotherapy from Laura S. Brown, Ph.D., ABPP

This site also includes forms for:
Note-taking form for psychotherapy
Agreement to work with attorney as a forensic expert
Informed consent for forensic assessment
Adolescent Informed Consent for Psychotherapy from the Center for Ethical Practice

This site also includes forms for:
Clinical Consultation Contract
"Notice of Privacy Practices" - Informed Consent Re: Limits of Confidentiality
Confidentiality Contract (Couples Therapy)
Formal Standards and Guidelines for Informed Consent
NOTE: Please follow this link for a more comprehensive array of professional standards and guidelines than those below.
American Association for Marriage and Family Therapy (AAMFT) Code of Ethics
Excerpt: "1.2 Marriage and family therapists obtain appropriate informed consent to therapy or related procedures as early as feasible in the therapeutic relationship, and use language that is reasonably understandable to clients. The content of informed consent may vary depending upon the client and treatment plan; however, informed consent generally necessitates that the client: (a) has the capacity to consent; (b) has been adequately informed of significant information concerning treatment processes and procedures; (c) has been adequately informed of potential risks and benefits of treatments for which generally recognized standards do not yet exist; (d) has freely and without undue influence expressed consent; and (e) has provided consent that is appropriately documented. When persons, due to age or mental status, are legally incapable of giving informed consent, marriage and family therapists obtain informed permission from a legally authorized person, if such substitute consent is legally permissible."
American Association of Christian Counselors: Code of Ethics
Excerpt: "Christian counselors secure client consent for all counseling and related services. This includes the video/audio-taping of client sessions, the use of supervisory and consultative help, the application of special procedures and evaluations, and the communication of client data with other professionals and institutions. Christian counselors take care that (1) the client has the capacity to give consent; (2) we have discussed counseling together and the client reasonably understands the nature and process of counseling; the costs, time, and work required; the limits of counseling; and any appropriate alternatives; and (3) the client freely gives consent to counseling, without coercion or undue influence.... Christian counselors respect the need for informed consent regarding the structure and process of counseling. Early in counseling, counselor and client should discuss and agree upon these issues: the nature of and course of therapy; client issues and goals; potential problems and reasonable alternatives to counseling; counselor status and credentials; confidentiality and its limits; fees and financial procedures; limitations about time and access to the counselor, including directions in emergency situations; and procedures for resolution of disputes and misunderstandings. If the counselor is supervised, that fact shall be disclosed and the supervisor's name and role indicated to the client."
American Association of Spinal Cord Injury Psychologists & Social Workers: Standards for Psychologists and Social Workers in SCI Rehabilitation
Excerpt: "It is assumed that all referenced treatment components and processes of acute inpatient and outpatient rehabilitation are so embraced by the voluntary agreement of the individual with SCI or their legally appointed guardian. If a minor child or incompetent individual refuses treatment, the psychosocial professional is guided by state regulations that govern such situations. If, however, the competent adult refuses rehabilitative treatment with the full benefit of informed consent, the health care system is bound to accept that decision."
American Group Psychotherapy Association: Guidelines for Ethics
Excerpt: "1.1 The group psychotherapist shall provide the potential group patient/client with information about the nature of group psychotherapy and apprise him or her of the risks, rights and obligations as a member of a therapy group."
American Mental Health Counselors Association: Code of Ethics
Excerpt: "Mental health counselors are responsible for making their services readily accessible to clients in a manner that facilitates the clients' abilities to make an informed choice when selecting a provider. This responsibility includes a clear description of what the client can expect in the way of tests, reports, billing, therapeutic regime and schedules, and the use of the mental health counselor's statement of professional disclosure. In the event that a client is a minor or possesses disabilities that would prohibit informed consent, the mental health counselor acts in the client's best interest."
American Psychoanalytic Association: Principles & Standards of Ethics for Psychoanalysts
Excerpt: "III. Mutuality and Informed Consent. The treatment relationship between the patient and the psychoanalyst is founded upon trust and informed mutual agreement or consent. At the outset of treatment, the patient should be made aware of the nature of psychoanalysis and relevant alternative therapies. The psychoanalyst should make agreements pertaining to scheduling, fees, and other rules and obligations of treatment tactfully and humanely, with adequate regard for the realistic and therapeutic aspects of the relationship. Promises made should be honored. When the patient is a minor these same general principles pertain but the patient's age and stage of development should guide how specific arrangements will be handled and with whom."
American Psychological Association: Ethical Principles of Psychologists and Code of Conduct
Excerpt: "3.10 Informed Consent (a) When psychologists conduct research or provide assessment, therapy, counseling, or consulting services in person or via electronic transmission or other forms of communication, they obtain the informed consent of the individual or individuals using language that is reasonably understandable to that person or persons except when conducting such activities without consent is mandated by law or governmental regulation or as otherwise provided in this Ethics Code. (See also Standards 8.02, Informed Consent to Research; 9.03, Informed Consent in Assessments; and 10.01, Informed Consent to Therapy.) (b) For persons who are legally incapable of giving informed consent, psychologists nevertheless (1) provide an appropriate explanation, (2) seek the individual's assent, (3) consider such persons' preferences and best interests, and (4) obtain appropriate permission from a legally authorized person, if such substitute consent is permitted or required by law. When consent by a legally authorized person is not permitted or required by law, psychologists take reasonable steps to protect the individual's rights and welfare. (c) When psychological services are court ordered or otherwise mandated, psychologists inform the individual of the nature of the anticipated services, including whether the services are court ordered or mandated and any limits of confidentiality, before proceeding. (d) Psychologists appropriately document written or oral consent, permission, and assent. (See also Standards 8.02, Informed Consent to Research; 9.03, Informed Consent in Assessments; and 10.01, Informed Consent to Therapy.)"
Association for Specialists in Group Work Best Practice Guidelines: Best Practice Guidelines
Excerpt: "A7# b. Group Workers facilitate informed consent. Group Workers provide in oral and written form to prospective members (when appropriate to group type): the professional disclosure statement; group purpose and goals; group participation expectations including voluntary and involuntary membership; role expectations of members and leader(s); policies related to entering and exiting the group; policies governing substance use; policies and procedures governing mandated groups (where relevant); documentation requirements; disclosure of information to others; implications of out-of-group contact or involvement among members; procedures for consultation between group leader(s) and group member(s); fees and time parameters; and potential impacts of group participation. # c. Group Workers obtain the appropriate consent forms for work with minors and other dependent group members. # d. Group Workers define confidentiality and its limits (for example, legal and ethical exceptions and expectations; waivers implicit with treatment plans, documentation and insurance usage). Group Workers have the responsibility to inform all group participants of the need for confidentiality, potential consequences of breaching confidentiality and that legal privilege does not apply to group discussions (unless provided by state statute)."
British Association for Counselling & Psychotherapy: Ethical Framework for Good Practice in Counselling & Psychotherapy
Excerpt: "Autonomy: respect for the client’s right to be self-governing. This principle emphasizes the importance of the client’s commitment to participating in counselling or psychotherapy, usually on a voluntary basis. Practitioners who respect their clients’ autonomy: ensure accuracy in any advertising or information given in advance of services offered; seek freely given and adequately informed consent; engage in explicit contracting in advance of any commitment by the client; protect privacy; protect confidentiality; normally make any disclosures of confidential information conditional on the consent of the person concerned; and inform the client in advance of foreseeable conflicts of interest or as soon as possible after such conflicts become apparent. The principle of autonomy opposes the manipulation of clients against their will, even for beneficial social ends."
British Columbia Association of Clinical Counsellors: Code of Ethical Conduct & Standards of Clinical Practice for Registered Clinical Counsellors
Excerpt: "In the B.C.AC.C.'s Code of Ethical Conduct, principle #2 (Informed Consent) states: 'Counsellors uphold clients' rights to informed consent, that is the clients' full and active participation in decisions which affect them, and freedom of choice based on the information shared.' Obtaining the informed consent of a client to the proposed clinical counselling is a critical, first-step in the counselling relationship. If a counsellor provides counselling services without consent, the counsellor could be liable for any resulting negative consequences. In most situations, a counsellor can presume that every adult client the counsellor sees is capable of giving, refusing or revoking consent to clinical counselling services. In the rare circumstance that the counsellor believes that an adult client is not capable of giving or is unable to communicate informed consent (e.g. because of mental defect or a physical, psychological or emotional incapacity, as examples), the counsellor should obtain consent from an authorized substitute decision maker.1 Under the Infants Act, a client under the age of 19 who understands the nature of the therapy that he or she will receive can also give their consent and the child can give consent without a parent or guardian's knowledge or approval..... Once the client gives consent, this does not end the process. The counsellor must ensure that informed consent continues throughout the counselling relationship. The counsellor may have to seek the client's consent again if circumstances change, such as when the nature of counselling services changes significantly from what was originally agreed to. The client can also withdraw consent at any time, thus effectively ending the counselling relationship. If a client decides to stop the counselling, but agrees to continue after a brief rest, the counsellor does not have to go through the process of obtaining a new consent, so long as the counsellor is satisfied that the client understood what was involved with the continuation of services. The counsellor should make a note in the clinical record of such an event.... Counsellors should document their client's consent. For example, a counsellor can make a note in the clinical record that the client was informed and gave an implied or an oral consent. A more prudent practice is to ask a client to sign a consent to treatment form. Such a form can be evidence that the client was fully informed and consented freely to the proposed services. A model for a consent form is proposed at the end of this standard. For there to be valid, fully informed and freely given consent to clinical counselling, the counsellor must provide the client with sufficient information to allow the client to understand the purposes, risks and benefits of the proposed counselling. The counsellor must also allow the client to ask questions and receive answers to address any concerns. Only then can it be said that the client gave informed consent without reservation. Generally, the sort of information a counsellor must provide to a client before consent is given is information that a reasonable person in the client's particular circumstances would require so as to understand the proposed services and make an informed decision. Usually, this will include information about the client's condition or situation for which the services are being proposed, the nature of the proposed clinical services, the risks and benefits of those services that a reasonable person would expect to be told about, as well as any clinical options, including not doing anything. A counsellor has a duty to communicate with a client in a way that is appropriate to that client's particular skills, ability and language."
California Board of Behavioral Sciences: Notice to California Consumers Regarding Psychotherapy on the Internet
Excerpt: "According to Business and Professions Code Section 2290.5, prior to the delivery of health care via telemedicine, the health care practitioner who has ultimate authority over the care or primary diagnosis of the patient shall obtain verbal and written informed consent from the patient or the patient's legal representative. The informed consent procedure shall ensure that at least all of the following information is given to the patient or the patient's legal representative verbally and in writing: (1) The patient or the patient's legal representative retains the option to withhold or withdraw consent at any time without affecting the right to future care or treatment nor risking the loss or withdrawal of any program benefits to which the patient or the patient's legal representative would otherwise be entitled. (2) A description of the potential risks, consequences, and benefits of telemedicine. (3) All existing confidentiality protections apply. (4) All existing laws regarding patient access to medical information and copies of medical records apply. (5) Dissemination of any patient identifiable images or information from the telemedicine interaction to researchers or other entities shall not occur without the consent of the patient."
Canadian Counselling Association: Code of Ethics
Excerpt: "When counselling is initiated, and throughout the counselling process as necessary, counsellors inform clients of the purposes, goals, techniques, procedures, limitations, potential risks and benefits of services to be performed, and other such pertinent information. Counsellors make sure that clients understand the implications of diagnosis, fees and fee collection arrangements, record-keeping, and limits of confidentiality."
Canadian Psychiatric Association: The CMA Code of Ethics Annotated for Psychiatrists
Excerpt: "Inform your patient when your personal morality would influence the recommendation or practice of any medical procedure that the patient needs or wants.... Provide your patients with the information they need to make informed decisions about their medical care, and answer their questions to the best of your ability."
Canadian Psychological Association: Code of Ethics
Excerpt: "1.19 Obtain informed consent from all independent and particularly dependent persons for any psychological services f=provided to them except in circumstances of urgent need (e.g., disaster or other crisis). In urgent circumstances, psychologists, would proceed with the assent of such persons, but fully informed consent would be obtained as soon as possible."
European Federation of Psychologists' Associations: Charter of Professional Ethics for Psychologists
Excerpt: "3.1.3 Informed Consent and Freedom of Consent * Clarification and continued discussion of the professional actions, procedures and probable consequences of the psychologist's actions to ensure that a client provides informed consent before and during psychological intervention. * Clarification for clients of procedures on record-keeping and reporting. * Recognition that there may be more than one client, and that these may be first and second order clients having differing professional relationships with the psychologist, who consequently has a range of responsibilities."
Irish Association for Counseling & Therapy: Code of Ethics & Practice
Excerpt: "Principle 1: Respect for the rights and dignity of the client. Practitioners are required to treat their clients as persons of intrinsic worth with a right to determine their own priorities, to respect clients' dignity and to give due regard to their moral and cultural values. Practitioners take care not to intrude inappropriately on clients' privacy. They treat as confidential all information obtained in the course of their work. As far as possible, they ensure that clients understand and consent to whatever professional action they propose."
National Association of Social Workers: Code of Ethics
Excerpt: 1.03 Informed Consent (a) Social workers should provide services to clients only in the context of a professional relationship based, when appropriate, on valid informed consent. Social workers should use clear and understandable language to inform clients of the purpose of the services, risks related to the services, limits to services because of the requirements of a third-party payer, relevant costs, reasonable alternatives, clients' right to refuse or withdraw consent, and the time frame covered by the consent. Social workers should provide clients with an opportunity to ask questions. (b) In instances when clients are not literate or have difficulty understanding the primary language used in the practice setting, social workers should take steps to ensure clients' comprehension. This may include providing clients with a detailed verbal explanation or arranging for a qualified interpreter or translator whenever possible. (c) In instances when clients lack the capacity to provide informed consent, social workers should protect clients' interests by seeking permission from an appropriate third party, informing clients consistent with the clients' level of understanding. In such instances social workers should seek to ensure that the third party acts in a manner consistent with clients' wishes and interests. Social workers should take reasonable steps to enhance such clients' ability to give informed consent. (d) In instances when clients are receiving services involuntarily, social workers should provide information about the nature and extent of services and about the extent of clients' right to refuse service. (e) Social workers who provide services via electronic media (such as computer, telephone, radio, and television) should inform recipients of the limitations and risks associated with such services. (f) Social workers should obtain clients' informed consent before audiotaping or videotaping clients or permitting observation of services to clients by a third party."
National Board for Certified Counselors: Code of Ethics
Excerpt: "8. When counseling is initiated, and throughout the counseling process as necessary, counselors inform clients of the purposes, goals, techniques, procedures, limitations, potential risks and benefits of services to be performed, and clearly indicate limitations that may affect the relationship as well as any other pertinent information."
Psychological Society of Ireland: Code of Professional Ethics
Excerpt: "1.3.3. Obtain informed consent from all independent and partially dependent persons for any psychological services provided to them."


Quotes and Information about Informed Consent from Articles, Books, & Studies

Ethics in Psychotherapy & Counseling: A Practical Guide, Third Edition by Kenneth S. Pope & Melba J.T. Vasquez. San Francisco: Jossey-Bass/John Wiley, 2007.
Excerpt: "The right to informed consent reflects respect for individual freedom, autonomy, and dignity. It is fundamental to the ethics of theraqpy and counseling. The APA ethics code (see Appendix A) sets forth specific standards for informed consent.... Truscott and Crook (2004) bnote that 'informed consent is the most represented value in the Canadian Code of Ethics for Psychologists; (p. 55; see Appendix B).
This fundamental concept can trip us up if we are not careful. Nothing blocks a patient's access to help with such cruel efficiency as a bungled attempt at informed consent.... The doors to our offices and clinics are wide open. The resources are all in place. But not even the most persistent patients can make their way past intimidating forms (which clerks may shove at patients when they first arrive), our set speeches full of noninformative information, and our nervous attempts to meet externally imposed legalistic requirements such as the Health Insurance Portability and Accountability Act. A first step is to recognize that informed consent is not a static ritual but a useful process."Psychologists should also consider and understand the potential impact of diversity on this process, such as the role that language, age (and developmental level), cultural background, and other factors may play in affecting the informed-consent process. Clinical work with individuals, couples, families, and groups each presents unique challenges with regard to informed consent, as do third-party requests for services, clinical supervision, research, and teaching. Knowing how best to address these challenges is of great importance for protecting clients' rights, promoting their autonomy, and working to achieve the best possible outcomes in the professional relationships we form with them.

"Informed Consent Through Contracting for Supervision: Minimizing Risks, Enhancing Benefits" by Janet T. Thomas. Professional Psychology: Research and Practice, June 2007, vol. 38, #3, pages 221–231.
Excerpt: "Obtaining the informed consent of supervisees at the outset of supervision is critical to minimizing risks and maximizing the benefits. Whether they are seeking supervision to meet academic, licensure, or certification requirements or to assist in rehabilitation following an ethical violation, supervisees all benefit from having clear information about that to which they are agreeing. Many authors and specialty guidelines recommend, and ethical standards require, that informed consent be obtained in writing. The format in which the information is presented will vary with the type of supervision, the context, and the preferences and theoretical orientation of the supervisor."
Clinical Handbook of Psychiatry & the Law by Paul Appelbaum & Thomas Gutheil. Philadelphia: Lippincott Williams & Wilkins, 2007.
Excerpt: "Because the doctrine of informed consent evolved from a series of court decisions, it may differ from jurisdiction to jurisdiction. Despite this, the general outlines of the doctrine are fairly well agreed on. Three components exist: information, voluntariness, and competence.""A Study of the Opinions and Behaviors of Physicians with Regard to Informed Consent and Refusing Treatment" by Adnan Ataç, Tolga Guven, Muharrem Uçarm & Tayfun Kir. Military Medicine, July, 2005, vol 170, #7, pages 566-571.
Excerpt: "Although opinions favoring the duties implied by informed consent are in the majority, these do not always reflect the behaviors in daily clinical practice..."

Ethics for the Practice of Psychology in Canada by Derek Truscott and Kenneth H. Crook. Edmonton, Alberta: University of Alberta Press, 2004.
Excerpt: "All other things being equal, the right to make decisions about whether or not to receive psychological services, and the nature of those services, belongs to the client. This conclusion finds support not only in psychologists' ethical values, particularly the social contract between a profession and society..., but also in our professional standards... and law.... Informed consent is the most represented value in the Canadian Code of Ethics for Psychologists...."

"Confidentiality and informed consent: School counsellors' perceptions of ethical practices" by Ron Lehr, Andrea Lehr, Andria, & John Sumarah. Canadian Journal of Counselling, 2007, vol. 41, #1, pages 16-30.
Excerpt: This study of school counsellors' views "identified five categories of issues and concerns related to confidentiality and informed consent: informing students on issues of confidentiality, age of consent, issues of professional confidentiality, sharing client information with others, and confidentiality with teachers and principals."

Clinical Manual of Psychiatry & Law by Robert Simon & Daniel Shuman. Washington, DC: American Psychiatric Publishing, 2007.
Excerpt: "The legl doctrine of informed consent is consistent with the provision of good clinical care. Informed consent allows patients to become partners in treatment determinations that accord with their own needs and values. In the past, phyisicians operated under the medical principle of primum non nocere - 'first do no harm.' Today, psychiatrists are required to practice within the legal model of informed consent and its concerns with patient autonomy. Most psychiatrists find increased patient autonomy desirable in fostering development of the therapeutic alliance that is so essential to treatment."

"Evolving Standards for Informed Consent: Is It Time for an Individualized and Flexible Approach?" by Doug Johnson-Greene. Professional Psychology: Research and Practice, April 2007, vol. 38, #2, pages 183-184.
Excerpt: "The importance of informed consent is probably vastly underestimated by many psychologists, and I suspect that some may tend to view it more cynically as an initial onetime legal hurdle for psychotherapy and research activities. There also appears to be an overemphasis on content issues (i.e., what do I need to include to make this a valid consent?) and comparatively little attention paid to process issues (i.e., what does a specific patient need to know to have a full appreciation for the parameters of this professional relationship?)."
Clinical Supervision: A Competency-Based Approach by Carol Falender & Edward Shafranske. Washington, DC: American Psychological Association, 2004.
Excerpt: "Ethics codes emphasize informed-consent requirements. For example, the state of Colorado requires psychologists to present certain written information to their clients, including therapist credentials, client rights, and the State Grievance Board address (Handelsman, 1990). Supervisors must be familiar with state regulations."

"Child consent and the law: An insight and discussion into the law relating to consent and competence" by S.A. Parekh. Child: Care, Health and Development, 2007, vol 33, #1, pages 78-82.
Excerpt: "A child can consent to treatment but usually in practice is unable to refuse it. Even if both the child and parents refuse treatment, courts are reluctant to accept this, particularly if it is in the best interest of the child.... The law in relation to child consent is unclear and requires changes in order to clarify what is perceived as the child's best interest."

"Readability Level of Health Insurance Portability and Accountability Act Notices of Privacy Practices Used by Psychologists in Clinical Practice" b y Steven Walfish & Bryan B. Ducey. Professional Psychology: Research and Practice, 2007, vol. 38, #2, pages 203-207.
Excerpt: "With an understanding of what makes a form readable, psychologists may revise their NPPs to include more concise sentences and fewer polysyllablic words. In this way they avoid risking an ethical violation, reduce their liability, and improve their informed consent process, which Handelsman (2001) suggested, can lead to better treatment outcomes. There is a misunderstanding that the federal government requires certain boilerplate language that is mandated for inclusion in these forms. However, what is mandated is that certain concepts be included, but the language is not specifically stated, other than that the forms should be written 'in plain English.' In providing an NPP that is readable, psychologists can better help clients understand how information shared with them will be treated or protected."

"Neuropsychological Considerations in Forensic Child Assessment" by Karen Wills & Jerry Sweet. In Forensic Mental Health Assessment of Children & Adolescents, edited by Steven Sparta & Gerry Koocher. New York: Oxford University Press, 2006.
Excerpt: "Written consent of the parents and of the retaining attorney should be obtained before contacting teachers to gather information about the child's functioning. Teachers and other collateral informants deserve to know, before they fill outa questionnaire or cooperate with an interview about their student, that they information they procvide may be used by the court or attorneys. Even though this knowledge may affect what the teacher says, it is unethical to imply to the teacher that the information athered will remain confidential, when, in fact, it will not."

"Assessment of Patients' Competence to Consent to Treatment" by Paul S. Appelbaum. New England Journal of Medicine, November, 2007, vol. 357, #18, pages 1834-1840.
Excerpt: "Legal standards for decision-making capacity for consent to treatment vary somewhat across jurisdictions, but generally they embody the abilities to communicate a choice, to understand the relevant information, to appreciate the...consequences of the situation, and to reason about treatment choices.... The level of impairment that renders a patient incompetent to make treatment decisions should ideally reflect a societal judgment about the appropriate balance between respecting the patient's autonomy and protecting the patient from the consequences of a bad decision.34 When physicians perform competence assessments, they should attempt to strike the same balance that would result if a court in the jurisdiction decided the case. In that regard, the presumption intrinsic to a modern democracy is that the vast majority of persons are capable of making their own decisions. Hence, only patients with impairment that places them at the very bottom of the performance curve should be considered to be incompetent. In practice, the stringency of the test applied varies directly with the seriousness of the likely consequences of patients' decisions.2,35 Although some commentators object to this "sliding scale" approach,36 it makes sense from a policy perspective, it was endorsed by the President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research,2 and in the judgment of many experts, it reflects how courts actually deal with these cases."

"Seeking an Understanding of Informed Consent" by Jeffrey Barnett. Professional Psychology: Research and Practice, April 2007, vol. 38, #2, pages 179–182.
Excerpt: "Psychologists should also consider and understand the potential impact of diversity on this process, such as the role that language, age (and developmental level), cultural background, and other factors may play in affecting the informed-consent process. Clinical work with individuals, couples, families, and groups each presents unique challenges with regard to informed consent, as do third-party requests for services, clinical supervision, research, and teaching. Knowing how best to address these challenges is of great importance for protecting clients' rights, promoting their autonomy, and working to achieve the best possible outcomes in the professional relationships we form with them."

"Patients' perceptions of written consent: A questionnaire study" by Andrea Akkad, Clare Jackson, Sara Kenyon, Mary Dixon-Woods, Nick Taub, and Marwan Habiba. British Medical Journal, September 9, 2006, Vol 333, No 7567.
Excerpt: "Our findings add to evidence showing that even when the consent process satisfies administrative and legal requirements, patients' needs may not be met.... Though patients did identify several important advantages of the consent process, there was substantial uncertainty about the implications of signing or not signing the consent form.... Many patients did not see written consent as functioning primarily in their interests nor as a way of making their wishes known.... Although there is no straightforward relation between knowledge of rights and ability to exercise those rights, a lack of awareness of the limits and scope of consent is clearly undesirable, potentially causing patients to feel disempowered and lacking in control."

Negotiating consent in psychotherapy by Patrick O'Neill. New York: New York University Press, 1998.
Excerpt: "While most therapists recognize that negotiation can clear up clients' misconceptions, fewer recognize that negotiation is also a vehicle for clearing up the therapist's misconceptions. An open dialogue can make the therapist aware of features of the case that depart from both the therapist's model and his or her previous experience, and thus it serves as a corrective to the representativeness and availability biases."

"Consent, Disclosure, and Waiver for the Forensic Psychological Evaluation: Rethinking the Roles of Psychologist and Lawyer" by William Foote & Daniel Shuman. Professional Psychology: Research & Practice, 2006, vol. 37, #5, pages 437–445.
Excerpt: "Separately and collectively, professional, ethical, and legal standards require that psychologists obtain consent from litigants prior to the initiation of forensic psychological evaluations. Psychologists have assumed this responsibility but may not have examined their professional capacity to fulfill this obligation. Psychologists lack the necessary legal training to fully inform the litigant of many legal ramifications of the psychological evaluation process. Even psychologists who are well informed in legal matters are not in a position to provide legal advice to litigants. Lawyers have also had the responsibility of preparing their clients for forensic psychological evaluations, and they may be hampered in this duty by a lack of understanding of psychological testing and interview procedures, psychological ethics, and the details of forensic evaluations. In this article, we have explicated the rationale for a joint procedure for informing the litigant about the psychological evaluation."

"Increasingly informed consent: Discussing distinct aspects of psychotherapy at different points in time" by Andrew Pomerantz. Ethics & Behavior, 15(4), October 2005, 351-360.
Excerpt: "Results indicate that, although psychologists believe that they are capable of presenting some information, such as payment and confidentiality policies, at the outset, they believe that a discussion of more substantive issues, such as psychotherapy duration, goals, orientation, and activities, can take place only after some therapy has transpired."

"Informed Consent in Psychotherapy" by John O. Beahrs and Thomas G. Gutheil. American Journal of Psychiatry, January, 2001, pages 4-10.
Excerpt: "While written consent might best meet formal legal criteria, it is our opinion that written contracts with the patients run the risk of sacrificing clinical rapport so essential to positive therapeutic outcome and fail to address new questions that emerge. Where written forms are required, nonetheless, they should be constructed with therapeutic intent, be relatively simple and straightforward, be framed in ordinary language without jargon, cover the key contractual business parameters and differential responsibilities, note the relevant uncertainties, and summarize general principles and specific emergency resources for what to do whenever the therapist is unavailable (58). Optimally, they also should mention the necessary role of patients’ self-therapeutic activity, which in certain cases can be elaborated to include voluntary abstinence from specific problem-maintaining behaviors such as abuse of controlled substances. Personalizing written informed consent forms has been shown to foster rapport and more constructive patient expectations (59). Finally, written forms should not be considered a substitute for ongoing verbal consent."

Ethics in Psychology: Professional Standards and Cases, 2nd Edition by Gerald P. Koocher and Patricia Keith-Spiegel. New York: Oxford University Press, 1998.
Excerpt: "Obtaining consent to treatment from a minor presents another set of issues.... Although a small number of states (e.g., the Commonwealth of Virginia) permit minors to consent to psychotherapy independently of their parents, such authority is an exception to the norm. In some states, such services could conceivably be provided as adjuncts to a minor's right to seek, without parental consent, birth control, or treatment for sexually transmitted diseases or substance abuse. Usually, however, a parent's permission would be needed to undertake psychotherapy with a minor client. When a child wishes to refuse treatment authorized by a parent, there is, under many circumstances, no legal recourse for the child even if the proposed treatment involves inpatient confinement...."

How To Survive and Thrive As a Therapist: Information, Ideas, & Resources for Psychologists in Practice by Kenneth S. Pope and Melba J.T. Vasquez. Washington, DC: American Psychological Association, 2005.
Excerpt: "As we discussed in more detail in Ethics in Psychotherapy and Counseling, informed consent cannot be reduced to a written form or confined to a static moment. It is a process that involves the therapist's ability to communicate with a particular person and make an informed judgment that he or she is in a good position to decide whether to consent to or decline specific psychological services. The information provided and the way it is provided depend on what kind of service (e.g., assessment or therapy) is under consideration, but the consent process can be assessed in terms of how well it addresses such questions as:
Does the person understand who will be providing the service and the psychologist's qualifications (e.g., license status)? If the service will be provided under supervision, with consultation, or other arrangements involving more than the individual psychologist, does the person understand the arrangement and its implications (e.g., for privacy, confidentiality, privilege, and record-keeping)?
Does the person understand the reason for meeting with the psychologist? Most people consulting an independent practitioner will have scheduled their own appointment on their own initiative, but some may show up because they were told to by an internist, an attorney, or a court and have no clear idea why they are there.
Does the person understand what services the psychologist will be offering and what the effects of these services may be?
Does the person understand the factors that may limit or significantly affect the services (e.g., the managed care coverage only authorizing five sessions of therapy)?
Does the person understand the relevant fee policies, including those for unpaid bills and for missed or canceled appointments?
Does the person understand the limitations to privacy, confidentiality, or privilege (e.g., conditions under which the psychologist either must or may disclose information to a third party)?"

"Informed consent documents of marriage and family therapists in private practice: A qualitative analysis" by Darryl Haslam and Steven Harris. American Journal of Family Therapy, 32(4), July-September 2004, 359-374.
Excerpt: "Findings suggest that there were both substantial consistency in the major areas of the documents but variance in their more detailed aspects. The latter was viewed as indicative of the subjectivity involved in creating ICDs and suggests that developing a universal document could be nearly impossible."

"Informed consent to undergo treatment for substance abuse: A recommended approach" by Robert Walker, T.K. Logan, James Clark, & Carl Leukefeld. Journal of Substance Abuse Treatment, 29(4), December 2005, 241-251.
Excerpt: "Standard treatment consent issues include (1) the clinical characteristics of the problem, including diagnosis; (2) treatment recommendations; (3) the risks and benefits of treatment; (4) the financial costs of the intervention; (5) alternative services or interventions should a client refuse the recommended form of care; and (6) freedom to choose or refuse treatment."

"Informed Consent Revisited: An Updated Written Question Format" by Andrew M. Pomerantz and Mitchell M. Handelsman. Professional Psychology: Research and Practice, 35(2), April 2004, 201-205.
Excerpt: "This updated question form offers many strengths. It facilitates open and honest discussion about important issues in psychotherapy, including common contemporary issues like third-party payment, manualization, and psychopharmacology, which reasonable people seeking contemporary psychotherapy would find relevant (Braaten & Handelsman, 1997; Canterbury v. Spence, 1972). Discussions around this form may also improve the effectiveness of whatever written information therapists give their clients or ask them to read and sign. Such open discussion enables the growth of a strong therapeutic relationship between therapist and client (Appelbaum, Lidz, & Meisel, 1987; Handelsman, 2001), one based on autonomy and empowerment through information rather than withholding, distrust, or patronization. Moreover, such a practice not only matches the recommendations of the newly revised APA ethics code (APA, 2002a), but it is also self-protective in that it helps psychologists to avoid legal problems (Plante, 1999). As with the original form (Handelsman & Galvin, 1988), discussion of these questions alone does not constitute a completed informed consent process, but it is one important facet of a process that will enable clients to make genuinely informed decisions regarding contemporary psychotherapy."

"Internet-mediated psychological services and the American Psychological Association Ethics Code" by Celia B. Fisher and Adam L. Fried. Psychotherapy: Theory, Research, Practice, Training, 40(1-2), Spring-Summer 2003, 103-111.
Excerpt: "Informed consent is seen by many as the primary means of protecting the self-governing and privacy rights of those with whom psychologists work. In the previous APA (1992) Ethics Code, the obligation to obtain informed consent was limited to research and therapy. The broader informed consent requirements introduced into the current revision of the Ethics Code reflect the societal change from a paternalistic to an autonomy-based view of professional ethics. Required elements of informed consent specifically relevant to Internet practice are detailed in Standards 9.03, Informed Consent in Assessments, and in 10.01, Informed Consent to Therapy. The obligations described in Standard 3.10, Informed Consent, apply to these other consent standards. When psychologists provide assessment, therapy, counseling, or consulting services over the Internet, these psychologists must obtain the informed consent of the individual by providing an appropriate explanation of the nature and purpose of services provided, fees, involvement of third parties, and limits of confidentiality as well as sufficient opportunity for the client/patient to ask questions."

"Informed Consent" by Marilyn Berner, in The Mental Health Practitioner and the Law edited by Lawrence E. Lifson and Robert I. Simon. Cambridge, MA: Harvard University Press, 1998.
Excerpt: "Competence is another essential 'element' of informed consent, like voluntariness and disclosure of adequate information. It includes four basic and interrelated sub-elements, the first of which is that the person in question have a factual understanding of the situation, which includes relevant needs and alternatives.... The second sub-element requires an appreciation of the seriousness of the condition and the consequences of accepting or rejecting treatment.... The third sub-element is the requirement that the patient express a preference. This preference does not have to be consistent with the clinician's preference, or with what she thinks would be in the patient's best interests.... The fourth and final sub-element of competence demamnds that the patient be capableo f working with the information disclosed by the clinician in a rational fashion."

"Mental Illness and the Freedom to Refuse Treatment: Privilege or Right" by Ronald Bassman. Professional Psychology: Research and Practice, 36(5), Oct 2005, 488-497.
Excerpt: "Most people are allowed to make extremely foolish life decisions without facing government intervention. You can choose to smoke until you die. You can eat so much that you cannot get through the doorway to leave your home. Being a member of a recognized religion allows you to make a health decision based on a tenet of your religion even if it may put your life in danger. But if you are a mental patient, there is an automatic bias to believe that you are incapable of making good decisions. Therefore it is necessary for the court to determine what is in your best interest regardless of your beliefs. The freedom to make poor choices is a privilege that is denied to the person who is labeled mentally ill. Chronicity means always having to prove that you have the capacity to make appropriate independent choices. To comply with the requirements of your supported group-living arrangement, you may be forced to attend a day treatment program from morning until evening. Your money, and how you spend it, can be controlled by a court-appointed payee or guardian. When being a mental patient is the overriding explanation of who you are, you must endure others' suspicion and monitoring of your personal decisions. When judging whether a person with a serious mental illness diagnosis has the capacity to understand the cost-benefit ratio for making a decision, an underlying assumption of global incapacity often guides that determination. In health decisions, Gert (1997) advises that capacity evaluations for a particular decision should always be situation-specific. Other medical ethicists want capacity determinations to be based on assessments that reflect general reasoning ability rather than being situation-specific (Freedman, 1981). Also, there are ethicists who argue for the inclusion or exclusion of risk and consequences as primary factors to consider in capacity evaluations (Wicclair, 1991). Ethicists do agree that significant efforts need to be made to include a person's preferences and values in the decision-making process regardless of disability. Substituted judgment that is deemed to be in the best interest of the patient occurs too frequently for people with mental, physical, sensory, and cognitive disability (Mitchell & Snyder, 2000; Prilleltensky & Nelson, 1997). The complexity of these decisions demands more than the loose and arbitrary practices that a person faces today."

Decoding the ethics code: A practical guide for psychologists by Celia B. Fisher. Thousand Oaks, CA: Sage, 2003.
Excerpt: "Informed consent is seen by many as the primary means of protecting the self-governing and privacy rights of those with whom psychologists work. In the 1992 Ethics Code, the obligation to obtain informed consent was limited to research and therapy. In the 2002 Ethics Code, the broader informed consent requirement for most psychological activities reflects the societal sea change from a paternalistic to an autonomy-based view of professional and scientific ethics."

Ethics and Values in Psychotherapy by Alan C. Tjeltveit. London: Routledge, 1999.
Excerpt: "[F]eminist therapists (Feminist Therapy Institute, 1990), explicitly religious therapists (e.g., Jensen and Bergin, 1988), and others have argued that therapists should be explicit about their ethical convictions. As the Feminist Therapy Institute Code of Ethics states, "feminist therapists recognize that their values influence the therapeutic process and clarfiy with clients the nature and effect of those values" (FeministTherapy Institute, 1990: 38). Doing so makes truly infomed consent possible. And if clients know their therapist's values, therapists are less likely to have an untoward influence on client values."

Medical Choices, Medical Chances by Harold J. Bursztajn, Richard I. Feinbloom, Robert M. Hamm, and Archie Brodsky. San Jose, CA: iUniversity Press, 2000.
Excerpt: "The term informed consent is used to describe the requirement that a doctor inform the patient (within reason) of the available options and the risks of each. The weakness of this concept lies in the word consent, which implies a passive consumer accepting options that the doctor (like a car dealer) presents, rather than participating in creating the options. The words informed choice better describe the scienfific gambling that patients and doctors...must do together."

"Informed Consent: Do You Know It When You See It? Evaluating the adequacy of patient consent and the value of a lawsuit" by Michael Lamport Commons, Joseph Anthony Rodriguez, Kathryn Marie Adams, Eric Andrew Goodheart, Thomas Gordon Gutheil, and Ellen Davis Cyr. Psychiatric Annals, 36(6), June 2006, 430-435.
Excerpt: "This study consisted of brief vignettes of counselors obtaining informed consent. Each vignette represented an order of hierarchical complexity as explained in the introduction. Rasch analysis was used to determine--in an objective, empirical manner--the degree of perceived effectiveness of informed consent in each vignette."

"Manageing Uncertainty: The Therapeutic Alliance, Informed Consent, and Liability" by Thomas G. Gutheil, Harold J. Bursztajn, Archie Brodsky, and Victorial Alexandra, in Decision-Making in Psychiatry and the Law edited by Thomas G. Gutheil, Harold J. Bursztajn, Archie Brodsky, and Victorial Alexandra. Baltimore, MD: Williams & Wilkins, 1991.
Excerpt: "The most serious problem with the consent form, however, is not its language, the response it elicits from the patient, or the circumstances in which it is profeered and signed. The overriding danger of the form is that it tempts the clinician to treat the transaction as a discrete tas that is accomplished, and thus terminated, once the patient has signed the form. This unfortunate misuse of the form defeats the very purpose of informed consent, which is to foster and sustain an ongoing diablogue between patient and physician, as part of the process of joint decision making. Ideally, informed consent is never over. At any point along the way, the patient should feel free to ask questions about the impact of the treatment...."

"APS Position Statement on the Use of Placebos in Pain Management" by Mark Sullivan, Gregory Terman, Brian Peck, Darin Correll, Ben Rich, Cawford Clark, Kenneth Latta, Allen Lebovits, and Gerold Gebhart. Journal of Pain, 6(4), Apr 2005, 215-217.
Excerpt: "The American Pain Society (APS) opposes the inadequate treatment of pain using any therapeutic modality including the use of placebo.... Informed consent is essential in all therapeutic situations, including the use of placebo. The deceptive use of placebos and the misinterpretation of the placebo response to discredit the patient's pain report are unethical and should be avoided....Health care providers, when using placebos, have an ethical obligation to ensure that placebos are not used for the punishment, deception, or long-term undertreatment of patients with pain. The use of informed consent is essential in all therapeutic situations, including those involving placebos."

"Informed Consent to E-therapy" by Patricia R. Recupero and Samara E. Rainey. American Journal of Psychotherapy, 59(4), 2005, 319-331.
Excerpt: "Although e-therapy has numerous proponents, no clinical trials have assessed its long-term effectiveness. To limit liability and to protect patients, e-therapy providers should disclose material risks as well as possible benefits and engage patients in an active dialogue. A thorough informed consent procedure enables patients to make an educated decision about whether e-therapy is right for them. In the future, e-therapy and informed consent online may become more common; in the mean time, clinicians must be prepared for e-therapy's uncertain legal status and allow patients to decide for themselves whether or not to seek counseling on the Internet."

Related Material:
A Practical Approach to Boundaries in Psychotherapy: Making Decisions, Bypassing Blunders, and Mending Fences
Boundary Issues in Psychotherapy: Widely-used Guides, Research, & Resources
Ethics Codes & Practice Guidelines for Assessment, Therapy, Counseling, & Forensic Practice
Ethics for Psychologists: 7 Essential Steps
Psychological Assessment: Clinical and Forensic
Ethics & Malpractice
Psychology Laws & Licensing Boards In Canada & the United States

Tuesday, August 19, 2008

Ethics and Malpractice

Ethics and Malpractice


Index to Full-text Articles, Sample Agreement, Books and Abstracts
Ethics for Psychologists: 7 Fundamentals [excerpt from Ethics in Psychotherapy & Counseling, 3rd Edition]
This article discusses the 7 essential basics of ethics in psychology.
Steps in Ethical Decision-Making [excerpt from Ethics in Psychotherapy & Counseling, 3rd Edition]


This article provides some steps helpful in thinking through how to respond to an ethical dilemma, taking action, and assuming personal responsibility for our response. These steps may help us to identify important aspects of a situation, consider positive and negative consequences of the ways in which we might respond, and discover better approaches.
21 Cognitive Strategies To Justify Any Unethical Behavior [excerpt from What Therapists Don't Talk About and Why: Understanding Taboos That Hurt Us and Our Clients]
This brief article discusses 21 common fallacies and rationalizations we tend to use to justify unethical behavior and quiet a noisy conscience.
Developing & Practicing Ethics [The Portable Mentor: Expert Guide to a Successful Career in Psychology]
This chapter discusses important steps in developing and practicing professional ethics, as well as the ways in which we rationalize unethical behavior. It includes national actuarial data on ethical problems encountered by psychologists, the 9 most frequent causes of licensing board disciplinary actions involving psychologists over a 14 year period, and the 16 most frequent causes of malpractice suits against psychologists over a 15 year period.


Informed Consent: Sample Forms, Standards, Guildelines, & References
A selection of sample forms for obtaining and documenting informed consent in psychotherapy & counseling; excerpts addressing informed consent from a large array of ethics codes and practice guidelines adopted by professional organizations; and excerpts from books, articles, and chapters discussing informed consent.


Ethics of Practice: The Beliefs and Behaviors of Psychologists as Therapists [American Psychologist]
This national survey of the degree to which clinical and counseling psychologists engage in each of 83 behaviors and the degree to which they considered each behavior to be ethical included such items as: treating homosexuality per se as pathological; accepting a client's decision to commit suicide; discussing clients (without names) with friends; engaging in sexual fantasies about a client; going into business with a client; breaking confidentiality if a client is suicidal; charging a client no fee; making a custody evaluation without seeing both parents; hugging a client; signing for hours a supervisee has not earned; filing an ethics complaint against a colleague; performing forensic work for a contingency fee; altering a diagnosis to meet insurance criteria; breaking confidentiality to report child abuse; inviting clients to a party or social event; accepting goods as payment; seeing a minor client without parental consent; telling a client "I'm sexually attracted to you"; terminating therapy if a client cannot pay; asking favors from clients; using a law suit to collect fees; lending money to a client; becoming sexually involved with a former client; and engaging in sex with clinical supervisees


Ethics of Teaching: Beliefs and Behaviors of Psychologists as Educators [American Psychologist]
This national survey of the degree to which psychology professors engage in each of 63 behaviors and the degree to which they considered each of these to be ethical included behaviors in such categories as course content, evaluation of students, educational environment, disrespectful behavior, research and publication issues, financial and material transactions, social relationships with students, and sexual relationships with students and other faculty.


Ethical Dilemmas Encountered by Members of the American Psychological Association [American Psychologist]
This survey of the general APA membership, based on the unique critical incident study that lead to APA's original code of ethics, examined 705 incidents (falling into 23 categories) that APA members described as ethically challenging or troubling.


Ethical and Malpractice Issues in Hospital Practice [American Psychologist]
This review of ethical and malpractice issues arising in hospital practice includes: (a) preparation and authorization to carry out clinical responsibilities, (b) personnel procedures, (c) financial and political forces influencing hospital policies, (d) billing procedures, (e) clinical procedures for responding to patients' needs, (f) confidentiality, (g) discrimination, (h) internship and training issues, (i) sexual abuse of patients, and (j) staff conflicts influencing patient care.


When Laws and Values Conflict: A Dilemma for Psychologists [American Psychologist]
This national study asked psychologists whether they believed "that formal legal and ethical standards should ever be violated on the basis of patient welfare or other deeper values" and "In the most serious, significant, or agonizing instance, if any, what law or formal ethical principle have you broken intentionally in light of a client's welfare or other deeper value?"


Disability, Accessibility, & Ethics in Psychology: 3 Barriers [Ethics & Behavior]
This article discusses the physical barriers, internet barriers, and cognitive & affective barriers in psychology training and practice that block accessibility for people with disabilities.


Identifying and Implementing Ethical Standards for Primary Prevention [Journal of Prevention & Intervention in the Community]
This article examines the prerequisites (e.g., group identity, recognition of need, and active participation) and necessary steps for establishing formal ethical accountability in the area of primary prevention, with emphasis on 5 ancient principles (avoiding harm, competence, avoiding exploitation, respect, and confidentiality) as well as two more historically recent principles (informed consent; social equity and justice).


On Violating Ethical Standards: 20 Easy Steps [Ethics in Psychotherapy & Counseling]
This article presents 20 of the most common fallacies and rationalizations we tend to use to justify unethical behavior and quiet a noisy conscience.


When The Therapist Doesn't Know What To Do: Some Steps That May Help [American Psychological Association]
Based on the views (a) that there are no clear, one-size-fits-all answers to therapeutic dilemmas, complexities, and challenge; (b) that various theoretical orientations provide different, sometimes opposing ways of approaching question, and (c) that each therapist, each client, and each situation is unique, whatever qualities they may share with other therapists, clients, and situations, these 10 steps may be helpful when therapists reach an impasse or just aren't sure what to do.


Malpractice & Licensing Pitfalls for Therapists: A Defense Attorney's List [Innovations in Clinical Practice] A question asked of attorneys who defend psychotherapists in civil suits and before licensing boards is what are the most common areas where therapists leave themselves vulnerable to attack. In this article, a defense attorney identifies some of the more common pitfalls that psychotherapists may encounter in hope that they can be avoided in the future.


HIPAA & Forensic Practice [American Psychology Law Society News] Does the Health Insurance Portability and Accountability Act (HIPAA) apply to forensic practice? In particular, do forensic practitioners incur the obligations of "covered entities," as defined in the Privacy Rules (§160.103), a subset of HIPAA? Do our files and the information we compile constitute Protected Health Information (PHI)? If so, what steps must we take to be compliant? Do HIPAA obligations attach to some areas of forensic practice, but not others? Even if forensic practice does not fall under HIPAA regulation, must we still attend to some issues raised by HIPAA?


AIDS and HIV Infection Update: New Research, Ethical Responsibilities, Evolving Legal Frameworks, and Published Resources [Innovations in Clinical Practice]
This chapter discusses research, ethical responsibilities, and legal considerations for practitioners; denial, delay, and distortion; test reliability, risk factors, and risk groups; general principles of counseling those people who have AIDs or who are or might be HIV-positive; suicide, the dilemma of the right to die, and foregoing life-sustaining interventions; neuropsychological aspects of AIDS and HIV infections; is there a legal duty to protect or warn third parties; and education and prevention.


The Ethics of Research Involving Memories of Trauma [General Hospital Psychiatry]
This invited editorial emphasizes the importance of ethical considerations in research on traumatic memories.


Security of Clinical Records on Computers
This brief article notes threats to the privacy of records on computers and the steps that therapists and counselors can take to make their computerized records secure.


Children, Ethics, & the Law
The complete contents of this book are presented here. Chapters include "Introduction & Basic Concepts"; "Psychotherapy With Children"; "Ethical Issues in the Psychological Assessment of Children"; "Confidentiality & Clinical Competence in Serving Children & Families"; "Research with Children: Planning & Recruiting Participants"; " Research with Children: Risk Potential & Management"; "Kids & the Courts"; Glossary of Major Case Law Decisions Cited"; & "References."


Psychologists' Use of E-mail with Clients: Some Ethical Considerations
This article by Kenneth Drude, Ph.D. & Michael Lichstein, Ph.D. examines email guidelines in such areas as policies & procedures, turn-around time for responding, message content, when not to use email, emergencies or crises, confidentiality & privacy, security, informed consent, fees, documentation & record-keeping, licensing jurisdiction, and competency.
Sample Agreement


Sample Agreement Between Expert Witness & Attorney by Kenneth S. Pope, Ph.D., ABPP, James N. Butcher, Ph.D., & Joyce Seelen, J.D.
Books

Ethics in Psychotherapy and Counseling: A Practical Guide, (Third Edition, 2007), by Kenneth S. Pope, Ph.D., ABPP & Melba J. T. Vasquez, Ph.D., ABPP Publisher: Jossey-Bass.
"This is absolutely the best text on professional ethics around... This is a refreshingly open and inviting text that has become a classic in the field." --Derald Wing Sue, Ph.D., Professor of Psychology, Teachers College, Columbia University
"I love this book! And so will therapists, supervisors and trainees. In fact, it really should be required reading for every mental professional and aspiring professional.... And it is a fun read to boot!"--Stephen J. Ceci, Ph.D., H.L. Carr Professor of Psychology, Cornell University


What Therapists Don't Talk About and Why: Taboos That Hurt Us and Our Clients by Kenneth S. Pope, Ph.D., ABPP, Janet L. Sonne, Ph.D., and Beverly Greene, PhD., ABPP Publisher: American Psychological Association
"This book is a must read for any psychotherapist. It explores the real world and often secret problems encountered in clinical practice in a creative, personal and very useful fashion. In this world of increasing professional accountability and liability, clinicians can be assured that their practices will be much better off for having implemented the common sense suggestions made by the authors."Jeffrey N. Younggren, Ph.D., ABPPRisk Management ConsultantAmerican Psychological Association Insurance Trust

How To Survive and Thrive as a Therapist: Information, Ideas, & Resources for Psychologists by Kenneth S. Pope, Ph.D., ABPP & Melba J. T. Vasquez, Ph.D., ABPP
Publisher: American Psychological Association
"This comprehensive practical guidebook is a must for all new and seasoned clinicians. From attorneys to ethics, from billing to possible errors in logic--it is all here. A remarkable compendium. Kudos to Pope and Vasquez!" Donald Meichenbaum, PhD, University of Waterloo, Ontario, Canada


Law and Mental Health Professionals: California by Brandt Caudill & Kenneth S. Pope, Publisher: American Psychological Association
This book reviews legislation, case law, and regulations relevant to mental health practice in California.


Abstracts
The Ethics of Counseling: A National Survey of Certified Counselors [Journal of Counseling & Development]
This national survey of counselors certified by the National Board for Certified Counselors asked participants to report their beliefs about whether each of 88 behaviors was ethical and the degree to which they were confident of their judgment about the behavior.
A Community Psychology of Ethics [American Journal of Community Psychology]
The topics in this discussion of ethical responsibilities in community psychology include: (1) difficulties in adapting ethical codes to the values, concerns, and language of community psychology; (2) the elusive nature of community psychology; (3) unforeseen effects of interventions; (4) the necessity of assuming responsibility for the consequences of interventions; (5) the clarification of assumptions and values underlying any formal code of ethics; and (6) the creative nature of ethical decision making.
Fee assessment and outpatient psychotherapy [Journal of Consulting & Clinical Psychology]
This multivariate study of 3 predictor variables (fee, diagnosis, and socioeconomic status) found only diagnosis to be significantly related to the outcome, number of appointments, and attendance of individual outpatient psychotherapy

Lie-Detector Tests Be Used To Monitor Convicted Sex Offenders

The British Psychological Society issued the following announcement about articles in the September, 2008, issue of the journal *Legal and Criminological Psychology*:

Should Lie-Detector Tests Be Used To Monitor Convicted Sex Offenders?

Article Date: 09 Aug 2008 - 4:00 PDT

In the September edition of Legal and Criminological Psychology, Forensic Psychiatrist Professor Don Grubin and Professor Gershon Ben- Shakhar argue the cases for and against the use of polygraph testing of convicted sex offenders.

Polygraph, or lie detector tests, monitor physiological responses such as heart rate. Individual's physiological responses to questions are measured and the polygraph records the body's responses that reflect psychological stress and arousal. In the case of convicted sex offenders, offender's responses to questions such as their use of pornography or whether they have been on the lookout for victims are measured, with the aim of monitoring behaviour and adherence to relapse prevention plans.

Polygraph testing is widely used with convicted sex offenders in the United States to assist in their treatment and supervision, and in 2007 legislation was passed in England enabling a national trial of mandatory testing in the probation service.

In the journal Legal & Criminological Psychology, Professor Don Grubin from Newcastle University and the Northumberland, Tyne and Wear NHS Trust puts forward the case for post-conviction sex offender testing (PCSOT).

He claims: "The focus of PCSOT is facilitating disclosure to assist in the treatment and supervision of sex offenders. PCOST has been found to be effective at getting a complete sexual history, checking compliance with treatment and supervision and gaining information about an
individual's offending."

However Professor Gershon Ben-Shakhar (Hebrew University of Jerusalem) believes: "Polygraph examinations have no value as a scientific method for detecting deception and uncovering information the examinee does not wish to disclose." Arguing that "autonomic measures are by no means measures of deception".

Furthermore, he claims that as the measurement of these physiological responses lacks standardization, the results cannot be quantified objectively so 'pass' and 'fail' are subjective judgements vulnerable to several biases.

The full cases for and against the use of polygraph testing of sex offenders can be found in Legal and Criminological Psychology, Volume 13 Part 2 September 2008.

Ken Pope


"It's a bit embarrassing to have been concerned with the human problem all one's life and find at the end that one has no more to offer by way of advice than 'Try to be a little kinder.'"
--Aldous Huxley (1894-1963)

NACO Revised Sex Education Manual

NACO releases revised sex education manual
August 10, 2008,


It has taken two years for the National Aids Control Organization or NACO to bring out a revised sex education manual after major flaws were reported in the earlier one. But despite the long delayed revisions huge shortcomings still remain.

Sakshi Sharma a student of Delhi's Veer Savarkar Sarvodaya Kanya Vidyalaya has just turned fourteen and like many of her classmates has questions about sex.

She thinks the internet may help her with sex education chapters that the government wants to introduce in schools by the end of this year.

"Since the diagrams have been deleted, we may have to depend upon external sources for information. But there, nobody will be able to tell us what is right or wrong," said Sakshi.

Detailed diagrams and flip charts were all part of the original manual developed for sex education by the National Aids Control Organization. But states like Madhya Pradesh and Maharashtra objected and a watered-down version has been prepared over two years. It's now posted on the net at nacoonline.org for feedback from parents, students and teachers.

But those who have been involved in revising the sex education manual say that it's best to introduce the subject slowly.

"Earlier, the content was explicit and needed revision. This revised version is culturally acceptable," said Jitendra Nagpal, member, sub-committeee, NACO.

But the reviews to the online draft are harsh.

"Students need to be told about basic sexual acts like sexual intercourse and masturbation," said Veena Batra, principal, Veer Savarkar Sarvodaya Kanya Vidyalaya.

While the NACO manual is being drafted Delhi's government schools are making do with a sex education manual prepared by local experts. Diagrams describing the anatomy of man and woman are missing from this book as well. So for now teenagers say they rely upon each other for information which is a dangerous trend for a city where sexual awareness is setting in earlier.

"It has been seen that children get exposed to sex and sexuality through internet and other sources from the age of 12, 13 onwards. The exposure is more in public schools but the government school children too are equally exposed to this. So, it is necessary that they are provided with basic and right information on this," said Dr Rajesh Sagar, psychiatrist, AIIMS.

Correct information is critical at a time when Delhi reported 15,970 HIV/AIDS cases last year. Of them 27.9 per cent or nearly 4,500 victims are between 15 and 29 years. More alarmingly, 1000 out of the 2000 new HIV/AIDS victims each year belong to this age group

http://www.ndtv.com/convergence/ndtv/story.aspx?id=NEWEN20080060831&ch=8/10/2008%208:59:00%20AM

Nursing Homes, Hospices, and End-of-Life Resources

Resources for Nursing Homes, Hospices, & End-of-Life Issues
Ken Pope


The following resources are intended to help individuals, families, and friends in their search for information, services, and facilities.
The material below includes searchable online databases, 24-hour helplines, books, and articles. They are meant to be of help to those who may need nursing homes, home health care, paliative care, hospices, assisted living, continuing care, geriatric care managers, living wills, advanced directives, hospital visitation authorization for unmarried partners, web connections with other family caregivers, and so on.
There are 5 groups of resources below: (a) online resources, (b) books, (c) hospice articles & chapters, (d) nursing home articles & chapters, and (e) end-of-life articles & chapters.
One of the other pages of this web site that provides relevant resources provides links for searching for free or low-cost medications and for searching for health insurance.
One of my other web sites focuses on disability & accessibily resources for psychology training & practice.
I hope you find these resources helpful.


Online Resources
AARP Guide To Medicare Coverage for Getting Care in a Hospital, Nursing Home, at Home and with Hospice: "Medicare Part A helps pay for inpatient care in hospitals and skilled nursing facilities. It also helps cover hospice care and some home health care. You must meet certain conditions to get these benefits. Medicare does not pay all of these costs. You, or separate insurance, must pay some of these costs, too."
Alzheimer's Association: Resources include 24-hour helpline, senior housing finder, carefinder, & library services.
Assisted Living INFO: "online guide for selecting an assisted living facility, retirement community, or other personal care facility anywhere in the United States. Our site is designed to assist you throughout the selection process. We offer tools to help you evaluate a senior's needs, facility selection tips, and our highly-acclaimed, map-based search engine to find a facility near family and friends."
Buddhist Hospice Directory: Listing, descriptions, & links to Buddhist organizations offering hospice and palliative care services.
Canadian Hospice Palliative Care Association: Information and services including an "on-line directory...designed to provide you with information on the availability of hospice palliative care services across Canada. Here you will find a listing of programs and services, their contact information, the population they serve, and where they provide care."
Cancer Care: "CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge."
Caregiver: information for family & professional caregivers; includes online listings for each state's Support Groups, Non-Profit Resources, Financial Aid. & Rural Caregiver Resources.
CaringBridge: "Free, personalized web sites that support and connect loved ones during critical illness.... A CaringBridge website helps keep loved ones informed during difficult times. In return, family and friends give patient and caregiver support through guestbook messages. Every free, personalized CaringBridge website includes: patient care journal to update family and friends; guestbook for messages of love; photo gallery; & free online support for using the service."
Caring Connections: online resources include "a state-specific living will or healthcare power of attorney"
Children's Hospice International: Directory: searchable online "worldwide database of programs caring for children with life-threatening conditions and their families"
Compassion and Choices: resources include forms for living will and advance directive (for each state) and hospital visitation authorization form for unmarried partners.
Consumer Reports: "The Deficient Dozen: Homes Noted for Poor Care on All Five of Our Lists": "The following nursing facilities have appeared on all four of our Nursing Home Watch Lists published between 2000 and 2005 as well as on the list of homes to avoid in the current Consumer Reports Nursing Home Quality Monitor."
Consumer Reports: "Form 2567: How to read this very important document": "When scouting nursing homes for a family member or another person, one of the best things you can do is get and read each home's Form 2567. It's the state inspection report for the facility, frequently called the state survey, and by law it must be 'readily accessible' to residents and visitors... Regular surveys are conducted every 12 to 15 months by state inspectors on behalf of the federal Centers for Medicare & Medicaid Services."
Consumer Reports: Nursing homes: Business as usual": "Two decades after the passage of a federal law to clean up the nation’s nursing homes, bad care persists and good homes are still hard to find. Two decades after the passage of a federal law to clean up the nation’s nursing homes, bad care persists and good homes are still hard to find."
A Dying Person's Guide to Dying by Roger Bone, M.D.: "By thinking ahead about what could happen - and about how you will deal with problems if they do happen, you can create a better life and a better quality of life for yourself and for the people who love and care about you. What I have to say is for the person who, like myself, is dying. We, too, need to plan - to think ahead in order to fashion, out of the time remaining, the best of what is possible. As I am dying from cancer..."
Family Caregiver Alliance: "information on care strategies, stress relief, community resources, family issues and hands-on care. Be sure to also visit our Fact Sheet section for a comprehensive collection of family-friendly publications filled with practical information. For more personal assistance, click on 'Ask FCA'. And don’t miss our online Discussion Groups, to keep you connected, 24 hours a day, with other caregivers."
Gilbert Guide: Allows online searching for facilities & services including: (a) assisted living, (b) homecare, (c) continuing care (CCRC), (d) nursing homes, (e) home health care, (f) geriatric care managers, (g) adult day services, and (h) hospices.
Homecare Directory: online searchable database for home care, hospice care, & geriatric care managers. "the most comprehensive site on the web for finding Home Care, Home Health Care and Hospice Care providers throughout the United States and Canada. We have simplified your search for Homecare, and Hospice Care providers by only listing the most qualified providers within North America. All Home Health Care providers on TheHomeCareDirectory.com are fully licensed, bonded, and insured."
Hospice Directory: online searchable database of hospices in Canada and the United States.
International Association for Hospice & Palliative Care: Directory: provides online searching of worldwide directory of hospices & sources of palliative care.
Mayo Clinic: Anticipating end-of-life needs of people with Alzheimer's disease: "The challenges of Alzheimer's disease multiply as the end of life approaches. Here are some ways to prepare for the tough choices ahead."
National Cancer Institute: End-of-Life Care: questions and answers - "The following information can help answer some of the questions that many patients, their family members, and caregivers have about the end of life."
National Hospice & Palliative Care Organization: Find a Provider: Allows online searches by city, name, specialization, etc.
National Institute for Jewish Hospice: "A 24 hour toll-free number counsels families, patients and care-givers, and provides locations of hospices, hospitals, health professionals and clergy of all faiths."
Nursing Home Directory: "free online guide for finding nursing homes and assisted living facilities nationwide."
Nursing Home INFO: Allows online searching for nursing homes by city, county, state, name, management, or special needs.
Palliative Care Directory of Hospitals: searchable online database "to help you or a loved one locate a hospital in your area that provides a palliative care program. The directory is based upon palliative care programs listed in the 2007 American Hospital Association (AHA) Annual Survey."
Palliative Dementia Care Resources: "We are dedicated to providing access to appropriate online resources for family and professional caregivers. In order to be responsive to the needs of caregivers in managing life's changes, preparing for life's end, and coping with grief and loss, our content is focused on those topics that are often most pressing."
Perinatal hospice/palliative care programs and support: online listing and links to hospitals with perinatal hospice/palliative care programs. "As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, some pioneering hospitals and hospices are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth. A perinatal hospice approach walks with these families on their journey through pregnancy, birth and death, honoring the baby as well as the baby's family. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see our resources pages)."
U.S. Department of Health & Human Services: Centers for Medicare & Medicaid Services: comprehensive government web site for medicare & medicaid coverage.
U.S. Department of Health & Human Services: Eldercare Locator: "links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers."
U.S. Health & Human Services Nursing Home Comparison Site: "The primary purpose of this tool is to provide detailed information about the past performance of every Medicare and Medicaid certified nursing home in the country." The site allows you to search by geography (i.e. all homes within a state or county), proximity (within a certain distance of a town or zip code), or name.
Veterans Aid & Attendance Pension Benefit: Guide to using veterans' pension benefit for home care, assisted living, nursing home, etc.
Veterans Coalition Senior Veterans Initiative: provides support to veterans and their families in regard to understanding and applying for disability, long-term care, assisted living, skilled nursing, and homebound care.

Books
Ahead of Your Time: A Complete Guide for End-of-Life Planning. Dick Coffin & Sue Coffin. Ahead Of Your Time Publishers, 2007.
American Medical Association Guide to Home Caregiving. American Medical Association. AMA, 2001.
Baby Boomer's Guide to Nursing Home Care. Eric M. Carlson & Katharine Bau Hsiao. Taylor, 2006.
Caregiving: Hospice-Proven Techniques for Healing Body and Soul. Douglas C. Smith. Wiley, 1997.
Caring for Your Parents by Hugh Delehanty and Elinor Ginzler. AARP, Sterling Publishing Co., Inc., New York, 2005.
Christian Caregiving: A Way of Life. Kenneth C. Haugk. Augsburg Publishing House. 1984.
The Comfort of Home: A Complete Guide for Caregivers. Maria M. Meyer & Paula Derr. CareTrust Publications, 2007.
Complete Eldercare Planner, 2nd Edition. Joy Loverde. Three Rivers Press, 2000.
Communicating at the end of life: Finding magic in the mundane. E. Foster. Lawrence Erlbaum Associates Publishers, 2007.
Dying at home: a family guide for caregiving. A. Sankar. Johns Hopkins University Press, 1999.
Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent. Barry Jacobs. Guilford Press, 2006.
End-of-Life Advisor: Personal, Legal, and Medical Considerations for a Peaceful, Dignified Death. Susan Dolan & Audrey R. Vizzard. Kaplan Publishing, 2008.
End-of-Life Handbook: A Compassionate Guide to Connecting with and Caring for a Dying Loved One. David B. Feldman, Stephen Andrew Lasher Jr., & Ira Byock. New Harbinger, 2008.
Everything You Need to Know About Nursing Homes: The Family's Comprehensive Guide to Either Working with the Institution or Finding Care Alternatives. Charlotte Digregorio. Civetta Press, 2005.
Family Hospice Care: Pre-Planning and Care Guide. Harry van Bommel. Media Futures Institute, 2006.
A Final Farewell: Your Personal Guide to End of Life Issues. Nancy Lawson. Legacy, 2002.
Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying. Maggie Callanan & Patricia Kelley. Bantom, 1997.
Guide to Caregiving in the Final Months of Life. Betsy Murphy & Linda Roberts. T. M. Brown Publishers, 2007.
Hospice Care for Children (2nd ed.). A. Armstrong-Dailey & S. Zarbock. Oxford University Press, 2001.
Hospice Care at Home: A Guide to Caring for Your Dying Loved One at Home. Starr Calo-oy & Bob Calo-oy. Orchard Publications, 2006.
The Hospice Choice: In Pursuit of a Peaceful Death. by Marcia Lattanzi-Licht, Galen W. Miller, & John J. Mahoney. Fireside, 1998.
Hospice Handbook: A Complete Guide. Larry Beresford & Elisabeth Kubler-Ross. Little, Brown, 1993.
Hospice and Palliative Care: Concepts and Practice, Second Edition. Denice C. Sheehan. Jones and Bartlett, Publishers, 2003.
How to Find Great Senior Housing: A Roadmap for Elders and Those Who Love Them, 2nd Edition. Phyllis Staff. The Best Is Yet.Net Press, 2004.
Infection Control In Home Care and Hospice, 2nd Edition. Emily Rhinehart & Mary McGoldrick Friedman. Jones & Bartlett, 2005.
Insider's Guide to Better Nursing Home Care: 75 Tips You Should Know. Donna M. Reed. Promethius, 2008.
Journey through the Dying Process: Caring for a Loved one at the End of Life. Fairview Health Services. Fairview Press, 2003.
Let Me Decide: What You Need to Know Now about End-Of-Life Care. William Molloy. Penguin Books Canada, 2005.
Living Well in a Nursing Home: Everything You & Your Folks Need to Know. Lynn Dickinson, Xenia Vosen, & Severine Biedermann. Hunter House, 2005.
Needs of the Dying: A Guide for Bringing Hope, Comfort, and Love to Life's Final Chapter. David Kessler. Harper, 2007.
Notes from the Waiting Room: Managing a Loved One's End-of-Life-Hospitalization (includes Choosing End-of-Life Care Without Hospitalization). Bart Windrum. Axiom Action, 2008.
Nursing Homes: The Family's Journey. Peter S. Silin. Johns Hopkins University Press, 2001.
On Death and Dying: What the Dying Have to Teach their Doctors, Nurses, Clergy, and their Own Families. Elisabeth Kubler-Ross. Scribner, 1969.
Peaceful Dying: The Step-by-step Guide To Preserving Your Dignity, Your Choice, And Your Inner Peace At The End Of Life. Daniel R. Tobin, With & Karen Lindsey. Da Capo Press, 1968.
Peaceful Journey: A Hospice Chaplain's Guide to End-of-Life. Matthew P. Binkewicz. Paramount Market Publishing, 2005.
Raising Moms. Rhonda H. Kelley. New Hope Publishers, 2006.
The Senior's Guide to End-of-Life Issues: Advance Directives, Wills, Funerals & Cremations. Rebecca Sharp Colmer & Todd M. Thomas. Eklektika Press, 2006.
Staying in Charge: Practical Plans for the End of Your Life. Karen Orloff Kaplan & Christopher Lukas. Wiley, 2004.
Transitions in Dying and Bereavement: A Psychosocial Guide for Hospice and Palliative Care. Moira Cairns, Marney Thompson, Wendy Wainwright, & Victoria Hospice Society. Health Professions Press, 2003. When Someone You Love Needs Nursing Home Care: The Complete Guide. Robert F. Bornstein, Mary A., Ph.D. Languirand, & Robert Bornstein. Newmarket Press, 2001.


Hospice Articles & Chapters
Abdel-Karim, I. A., Sammel, R. B., & Prange, M. A. (2007). Causes of death at autopsy in an inpatient hospice program. Journal of Palliative Medicine, 10(4), 894-898.
Ackson, A., Hodson, M., Brady, D., & Pahl, N. (2007). Spreading the word...Hospice Information systems. Omega: Journal of Death and Dying, 56(1), 47-62.
Adamle, K. N., & Ludwick, R. (2005). Humor in hospice care: Who, where, and how much? American Journal of Hospice & Palliative Medicine, 22(4), 287-290.
Adunsky, A., Aminoff, B. Z., Arad, M., & Bercovitch, M. (2008). Mini-Suffering State Examination: Suffering and survival of end-of-life cancer patients in a hospice setting. American Journal of Hospice & Palliative Medicine, 24(6), 493-498.
Andruccioli, J., Montesi, A., Raffaeli, W., Monterubbianesi, M. C., Turci, P., Pittureri, C., et al. (2007). Illness awareness of patients in hospice: Psychological evaluation and perception of family members and medical staff. Journal of Palliative Medicine, 10(3), 741-748.
Arber, A. (2007). "Pain talk" in hospice and palliative care team meetings: An ethnography. International Journal of Nursing Studies, 44(6), 916-926.
Ardelt, M., & Koenig, C. S. (2006). The Role of Religion for Hospice Patients and Relatively Healthy Older Adults. Research on Aging, 28(2), 184-215.
Armstrong-Dailey, A., & Zarbock, S. (2001). Hospice care for children (2nd ed.): Oxford University Press: New York.
Azoulay, D., Hammerman-Rozenberg, R., Cialic, R., Ein Mor, E., Jacobs, J. M., & Stessman, J. (2008). Increasing opioid therapy and survival in a hospice. J Am Geriatr Soc, 56(2), 360-361.
Bain, K. T., & Weschules, D. J. (2007). Medication inappropriateness for older adults receiving hospice care: a pilot survey. Consult Pharm, 22(11), 926-934.
Blaschko, S. (2007). Hospice. Families, Systems, & Health, 25(1), 133.
Brown, W. (2008). Opioid use in dying patients in hospice and hospital, with and without specialist palliative care team involvement. European Journal of Cancer Care, 17(1), 65-71.
Bruce, A., & Davies, B. (2005). Mindfulness in Hospice Care: Practicing Meditation-in-Action. Qualitative Health Research, 15(10), 1329-1344.
Carlson, B., Simopolous, N., Goy, E. R., Jackson, A., & Ganzini, L. (2005). Oregon Hospice Chaplains' Experiences with Patients Requesting Physician-Assisted Suicide. Journal of Palliative Medicine, 8(6), 1160-1166.
Carlson, M. D. A., Morrison, R. S., Holford, T. R., & Bradley, E. H. (2007). Hospice care: What services do patients and their families receive? Health Services Research, 42(4), 1672-1690.
Casarett, D., Crowley, R., Stevenson, C., Xie, S., & Teno, J. (2005). Making Difficult Decisions About Hospice Enrollment: What Do Patients and Families Want to Know? Journal of the American Geriatrics Society, 53(2), 249-254.
Catt, S., Blanchard, M., Addington-Hall, J., Zis, M., Blizard, R., & King, M. (2005). Older adults' attitudes to death, palliative treatment and hospice care. Palliative Medicine, 19(5), 402-410.
Cherney, C. L. (2008). Determining hospice benefit for patients with dementia. JAMA: Journal of the American Medical Association, 299(15), 1774.
Connor, S. R. Development of hospice and palliative care in the United States. Omega (Westport), 56(1), 89-99.
Connor, S. R. (2007). Development of hospice and palliative care in the United States. Omega: Journal of Death and Dying, 56(1), 89-99.
Connor, S. R., Lycan, J., Schumacher, J. D., Werth Jr, J. L., & Blevins, D. (2006). Involvement of Psychologists in Psychosocial Aspects of Hospice and End-of-Life Care. In Psychosocial issues near the end of life: A resource for professional care providers. (pp. 203-217): American Psychological Association: Washington.
Connor, S. R., Pyenson, B., Fitch, K., Spence, C., & Iwasaki, K. (2007). Comparing Hospice and Nonhospice Patient Survival Among Patients Who Die Within a Three-Year Window. Journal of Pain and Symptom Management, 33(3), 238-246.
Corr, C. A. (2007). Hospice: Achievements, legacies, and challenges. Omega: Journal of Death and Dying, 56(1), 111-120.
Csikai, E. L. (2006). Bereaved hospice caregivers' perceptions of the end-of-life care communication process and the involvement of health care professionals. Journal of Palliative Medicine, 9(6), 1300-1309.
Davies, B., Collins, J., Steele, R., Cook, K., Distler, V., & Brenner, A. (2007). Parents' and children's perspectives of a children's hospice bereavement program. Journal of Palliative Care, 23(1), 14-23.
Davies, B., Collins, J. B., Steele, R., Cook, K., Brenner, A., & Smith, S. (2005). Children's Perspectives of a Pediatric Hospice Program. Journal of Palliative Care, 21(4), 252-261
De Lima, L., & Doyle, D. (2007). The International Association for Hospice and Palliative Care list of essential medicines for palliative care. Journal of Pain & Palliative Care Pharmacotherapy, 21(3), 29-36.
DePalma, J. A. (2005). Evidence-Based Decision Making for Administrators: Hospice Program Example. Home Health Care Management & Practice, 17(6), 483-484.
Doberman, D. J., Yasar, S., & Durso, S. C. (2007). Would you refer this patient to ho0